People Magazine: D.C. Mom Whose Son Died of a Rare Disease Brings Joy to Other Sick Children – ‘It’s About Making the Most of Every Single Day’ – Hope for Henry Foundation

People Magazine: D.C. Mom Whose Son Died of a Rare Disease Brings Joy to Other Sick Children – ‘It’s About Making the Most of Every Single Day’

People Magazine: D.C. Mom Whose Son Died of a Rare Disease Brings Joy to Other Sick Children – ‘It’s About Making the Most of Every Single Day’

One year after losing their son Henry to a rare genetic disease, Laurie Strongin and her husband, Allen Goldberg, spent what would have been their son’s eighth birthday coming up with a plan to carry on his remarkable spirit.

“We had been thinking about what we were going to do on that day, given that Henry wasn’t with us anymore,” Strongin tells PEOPLE. “And so we really thought about honoring his legacy of being able to have a wonderful and normal life despite being really sick.”

Read the full story and watch the video here http://www.people.com/article/hope-for-henry-dc-mom-whose-son-died-of-rare-disease-brings-joy-kids-with-cancer-other-serious-illnesses