Meet Henry

On October 25, 1995, Henry Strongin Goldberg was born. Two weeks later, he was diagnosed with Fanconi anemia, a disease that threatened to take his life, and challenged us to live well despite it. His sparkly eyes, mischievous grin, and infectious smile were a call to action to smile back, laugh along and dance with him. His ear-to-ear smile and joyous laughter were far more noticeable than his many surgical scars and low-platelet related bruises.

Henry embraced each opportunity for living completely and reminded the rest of us to do so.


He suffered plenty of setbacks and spent more nights in the hospital fighting against whatever Fanconi anemia would throw his way, but just when it looked like the disease was too tough of an opponent, Henry would rise up and get back to the life he chose to lead. He had ice cream for dinner and transitioned from the hospital to running a lemonade stand in a matter of minutes.

On December 11, 2002, the unimaginable happened. Henry died.

Henry is alive and well in our hearts and minds, and every day we strive to be true to the lessons he taught us about the importance of family, friends, love, courage, and laughter.

Henry was the master of living well and laughing hard. To honor his life and share his magical way of making each day matter, we founded the Hope for Henry Foundation. We are singularly focused on creating innovative programs to help hospitalized kids adhere to their medical plans and thrive.